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Contaminated blood scandal inquiry hearings to start



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Steve Diamond died in December organ failure ultimately caused by the drugs he was given as a young man.

Public inquiry on what has been called "the worst scandal in the history of NHS treatment 'to start taking evidence Tuesday.

Some 4,800 people with the disorder hemophilia were infected with hepatitis C or HIV in the 1970s and '80s. More than 2,000 believed to have died.

Thousands more may have been exposed through blood transfusion after surgery or childbirth.

"This is not the life I imagined in terms of dreams, in terms of ambition," said Victoria Derbyshire program in April 2018, Steve Diamond.

"It was a life of disease, illness, anxiety, anxiety.

"When I say to my wife, I'm talking about it as my widow's waiting."

On December 23, 2018, Steve has died at the age of 62 organ failure ultimately caused by the drugs he was given as a young man.

"Miracle drug"

Steve was born in 1956 with mild hemophilia, a genetic disease that prevents blood clotting properly.

He played rugby at school and studied Russian at university, where he met his wife, Su Gorman, waiting on the train platform.

"It was a massive bruise on his thigh size cards, and it bothers me," she recalls.

"Steve was not in the habit of getting treatment, so he said that he would like to get it checked out. It was the first time they injected him with the "miracle drug" called factor VIII. »

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Steve and Su wedding day

At that time, when a new drug was made out of & # 39; blood pooled plasma of tens of thousands of donors.

In the 1970s and 80s, NSZE was import factor VIII of USA, where the high-risk groups such as prisoners have been paid to donate blood.

The first sign that something is very wrong came in 1983, as well.

Reports about a new form of cancer began with & # 39; to appear first in the gay community, among other groups, such as hemophilia.

Around the same time, Steve had a small accident and went to a local hospital to get it checked out.

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Factor VIII / Marc Marne

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Factor VIII has been imported from the United States in the 1970s and 80s

"The young receptionist took the package with shelves and treated him with factor VIII. Bruise disappeared after an hour, so it was completely unnecessary, "said Su.

"Soon after, they called him back and said he had been exposed to HIV."

The testing process took 18 months – "absolutely monstrous" period.

Some 1,200 British hemophiliacs were infected with HIV, thus including many young children of primary school age. Only 250 are still alive today.

Steve was one of the lucky ones.

"It was a huge relief. He was told that he was away from HIV, but no mention was made of the hepatitis C at this point, "says Su.

"Silent Killer"

Hepatitis C & # 39 is now considered a virus that affects more than 150 million people, about 2% of the world population. However, he was not found and is not named until 1989.

It was not until 1993, and then lived and worked in France, Steve said he had the condition.

While the couple is trying to have a baby again. They were immediately taken to the IVF program.

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Steve Diamond died in December organ failure ultimately caused by the drugs he was given as a young man

"Steve said bluntly that [possible] Effects were liver cirrhosis, cancer, transplant, premature death, "says Su.

"Within 24 hours [of diagnosis] we learned that we would never have children, and that he was going to die soon. "

The damage was done

It was only in 2013 that a new drug has been approved, it can successfully get rid of the hepatitis C virus from the body of Steve.

By that time, however, the damage was already done. Scans showed it to liver cirrhosis and a bunch of cells showed early signs of cancer.

His health declined rapidly over the last 18 months of his life.

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Media signatureSteve Diamond, speaking in the program of the BBC's Victoria Derbyshire in April last year

At the end of December 2018, he woke up in the house of hemoptysis.

"They took him to intensive care. He knew that I was there, and he told me: "I love you", "Su says.

"The last thing he said that he wanted those who did it to him to repent. Then one morning, as he was holding my hand, he left me. "

inquiry

Public scandal investigation was first announced in July 2017.

Since then, the campaign groups say that more than 150 hemophiliacs, as Steve died.

The request will be considered evidence of about 2,500 people, most of whom were infected with, or affected by contaminated blood products such as factor VIII or IX.

Victims and relatives want to know why the warnings about safety can be ignored by the drug, so plans to make the UK self-sufficient in blood products were written off, and why a lot of documents and recording of patients appear to have been lost or destroyed.

The investigation, led by retired judge Sir Brian Langstaff, can last for more than two years.

Ahead of the public hearings, the government announced more financial support for people in the UK affected by the tragedy, a total of £ 75m from £ 46m.

Department of Health and Social Protection called tainted blood scandal "a tragedy that would never have happened," adding that "ongoing public inquiry was set up to get to the truth and give seven & # 39; responses pits that they deserve."

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"I want to see justice," says Su.

"I want to see people brought to justice, I want to see who has found that behaved inappropriately, criminally negligent or made to explain himself.

"Steve's dying words, if he wanted to repent. I promised him that they would, and it's a promise I intend to keep. "

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